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REN Rti. The REN's goal for this proposal is to build a patient-centered and -driven database designed to provide the patients...

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#TBT: One Year Ago, 700+ Groups Rally Behind 21st Century Cures
via energycommerce.house

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Vice President Biden Delivers Cancer Moonshot Report, Announces Public and Private Sector Actions to Advance Cancer Moon...
via enewspf

WASHINGTON, D.C. –(ENEWSPF)–October 17, 2016. Today in the Oval Office, Vice President Joe Biden delivered the Cancer Moonshot report to the President and the American public. The report summarizes the work of the Cancer Moonshot Task Force since its...
It’s OK to Have the Courage To Care
via okgrassroots

This past Saturday I had the privilege of attending the Medicinal Cannabis Education and Advocacy Event that took place at the Oklahoma State Capitol. The event was sponsored by Senator Constance Johnson and it featured speakers including Dr. Ed Maa...
The SUDEP Institute Challenge: Seeker Spotlight
via innocentive

Cyndi Wright, SUDEP Institute Director The Epilepsy Foundation is offering US$15,000 to ideas for a viral and creative advocacy campaign that helps its mission of educating the public, providing better healthcare to people with epilepsy and seizures...
Epilepsy Foundation SUDEP Institute Announces Winner for Second Challenge: “EpSMon” Mobile App — Preventing Epilepsy Sei...
via lebanesebizheadlines

LANDOVER, MD—(Marketwired – March 02, 2016) – The Epilepsy Foundation SUDEP (sudden unexpected death in epilepsy) Institute announced the winners of its second challenge, “Preventing Epilepsy Seizures.” This was the second of four challenges that will...

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REN - Home

The Rare Epilepsy Network (REN) Patient Powered Research Network (PPRN) is an initiative created by and for patients with catastrophic rare epilepsies. The REN's goal for this proposal is to build a p...
REN - Learn

Learn What is the Rare Epilepsy Network? The Rare Epilepsy Network, or REN for short, is a collaboration between the Epilepsy Foundation, RTI international, Columbia University, and many different org...

REN - Home

Home Privacy Statement Rare Epilepsy Network is committed to protecting your privacy and developing technology that gives you the most powerful and safe online experience. This Statement of...