Globalgenes.org

BOSTON and ALISO VIEJO, Calif., Aug. 18, 2016 /PRNewswire-USNewswire/ -- Global Genes, a leading global advocacy organization for patients and families fighting rare and genetic diseaSES, and PlatformQ Health are proud to announce the strategic partnership...

At its upcoming Martina McBride Gala Concert in November, Dana’s Angels Research Trust will celebrate being honored as a recipient of the 2016 RARE Champions of Hope Award for Collaborations in Science and Technology. On Saturday, Sept. 24, Global Genes...

DURHAM, N.C., August 10, 2016 — Patient advocacy groups play an important and growing role in developing drugs to treat cancer and rare diseases, contributing to study design, recruiting patients, and even directly funding clinical trials. At a September...

Rare Disease Day | Office of Rare Diseases Research (ORDR-NCATS) Rare Diseases & Genomics Rare Disease Day  at NIH is on February 28, 2014 Rare Disease Day, February 28, 2014 video Dr. Stephen Groft talks about last days at NIH with Global...

February 28 is Rare Disease Day, which is an annual, awareness-raising event co-ordinated by EURORDIS at the international level. In honor of Rare Disease Day here is what you need to know about rare diseases. What is Rare Disease Day? The main objective...