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The Democracy Collaborative's year in review Posted by:  John Duda It's been an incredible 12 months at the Democracy Collaborative, and we thought we should take the time to collect all the new projects and publications we've worked on in 2...

Launches first Global Alliance for Genomics and Health Beacon by a commercial laboratory Presenting at Pistoia Alliance Spring Conference 2015 being held in Zurich, Switzerland ELMWOOD PARK, N.J., April 14, 2015 (GLOBE NEWSWIRE) — BioReference Laboratories...

Rare disease is one of our main areas of focus here at Premier, so you’ll often see my colleagues and me talking about rare, through our webinars and white papers, and basically, almost any phone conversation with us. Last week, I attended the NORD Summit...

Rare Disease Day | Office of Rare Diseases Research (ORDR-NCATS) Rare Diseases & Genomics Rare Disease Day  at NIH is on February 28, 2014 Rare Disease Day, February 28, 2014 video Dr. Stephen Groft talks about last days at NIH with Global...

Join the Health Services Research Collaborative for the second in a series of speakers on patient and family engagement: Participant-Driven Research:  If we are not at the table, we are on the menu Sharon Terry, MA President and CEO of Genetic Alliance...