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WASHINGTON, DC – One year ago this week, support was surging for H.R. 6, the 21st Century Cures Act. As the House prepared to vote on the Cures legislation, over 700 groups encompassing patient advocacy groups, rare disease groups, cancer centers, technology groups, top universities, biopharmaceutical companies, medical device companies, and others from across the country rallied in support of the landmark bill. A list of those groups is below:
60 Plus
A Kids' Brain Tumor Cure (aka The Pediatric Low Grade Astrocytoma Foundation)
Abigail Alliance for Better Access to Developmental Drugs
Abramson Cancer Center
Academy of Radiology Research
Acid Maltase Deficiency Association (AMDA) Acromegaly Community
ACT for NIH: Advancing Cures Today
Addario Lung Cancer Foundation
Adrenal Insufficiency United
Adult Congenital Heart Association
Advanced Practice Registered Nurse
AIDS Alliance for Women, Infants, Children, Youth & Families
Alagille Syndrome Alliance
Albert Einstein Cancer Center
Ali's Angels Foundation
Allergy & Asthma Network
Alliance for Aging Research
Alliance for Lupus Research
Alliance for Patient Access
Alliance for the Adoption of Innovations in Medicine (Aimed Alliance)
Alpha-1 Foundation
Alport Syndrome Foundation
Alstrom Syndrome International
Alternating Hemiplegia of Childhood Foundation
Alzheimer's and Dementia Alliance of Wisconsin
Alzheimer's Association
Alzheimer's Drug Discovery Foundation
Alzheimer's Tennessee
American Academy of Dermatology Association
American Academy of Neurology
American Academy of Ophthalmology
American Academy of Physical Medicine and Rehabilitation
American Aging Association
American Association for Cancer Research
American Association for Geriatric Psychiatry
American Association for Laboratory Animal Science
American Association for Long Term Care Nursing
American Association for Respiratory Care
American Association for the Advancement of Science
American Association of Colleges of Nursing, AACN
American Association of Colleges of Pharmacy
American Association of Diabetes Educators
American Association of Kidney Patients
American Association of Neurological Surgeons
American Association of Nurse Anesthetists, AANA
American Association of Nurse Practitioners, AANP
American Autoimmune & Related Diseases
American Autoimmune Related Diseases Association
American Behcet's Disease Association
American Brain Coalition
American Brain Tumor Association
American Cancer Society Cancer Action Network
American College of Emergency Physicians
American College of Gastroenterology
American College of Radiology (ACR)
American College of Surgeons
American College of Surgeons Commission on Cancer
American Epilepsy Society
American Federation for Aging Research
American Foundation for Suicide Prevention
American Foundation for the Blind
American Gastroenterological Association
American Heart Association
American Institute for Medical and Biological Engineering
American Joint Replacement Registry
American Kidney Fund
American Lung Association
American Multiple Endocrine Neoplasia Support
American Neurological Association
American Nurses Association, ANA
American Occupational Therapy Association
American Partnership for Eosinophilic Disorders (APFED)
American Physiological Society
American Porphyria Foundation
American Self Help Group Clearinghouse
American Society for Gastrointestinal Endoscopy
American Society for Microbiology
American Society for Nutrition
American Society for Pharmacology and Experimental Therapeutics (ASPET)
American Society for Radiation Oncology
American Society for Reproductive Medicine
American Society of Clinical Oncology
American Society of Hematology American Society of Nephrology
American Society of Nephrology
American Society of Nuclear Cardiology
American Society of Plastic Surgeons
American Society of Transplantation (AST)
American Syringomyelia & Chiari Alliance Project
American Thoracic Society
American Urological Association
American Veterinary Medical Association
Americans for Medical Progress
Amputee Coalition
Amyloidosis Support Groups
Anesthesia Quality Institute/American Society of Anesthesiologists
APBD Research Foundation
Apervita, Inc.
Aplastic Anemia & MDS International Foundation
Ara Parseghian Medical Research Foundation
Arthritis Foundation
Asbestos Disease Awareness Organization
Assisted Living Federation of America
Association for Creatine Deficiencies
Association for Frontotemporal Degeneration (AFTD)
Association for Glycogen Storage Disease
Association for Research in Vision and Ophthalmology
Association of Academic Health Sciences Libraries
Association of American Cancer Institutes
Association of American Medical Colleges
Association of American Universities (AAU)
Association of American Veterinary Medical Colleges
Association of Gastrointestinal Motility Disorders
Association of Independent Research Institutes
Association of Public and Land-grant Universities
Association of University Centers on Disabilities
Asthma and Allergy Foundation of America
Ataxia Telangiectasia Children's Project
athenahealth
Autism Speaks
Autoinflammatory Alliance
Banner Alzheimer's Institute
Barbara Ann Karmanos Cancer Institute
Basal Cell Carcinoma Nevus Syndrome Life Support Network
Batten Disease Support & Research Association
Baylor College of Medicine
Bcureful
BD
Benign Essential Blepharospasm Research Foundation
Benjamin Rose Institute on Aging
Biocom
BioNJ
Biophysical Society
BJC HealthCare
Bladder Cancer Action Network
Blue Faery: The Adrienne Wilson Liver Cancer Association
Boley Centers
Boston University
Boston University School of Medicine
Brain Injury Association of America
BRBN Alliance
Bread for the City
Breath of Hope
Bridge the Gap– SYNGAP Education and Research Foundation
Brown University
California Life Sciences Association
Californians for Cures
Cancer Therapy and Research Center at The University of Texas Health Science Center at San Antonio
CancerCare
Cardinal Bernardin Cancer Center of Loyola University Chicago
Cardio-Facio-Cutaneous International
Caregiver Action Network
Caring for Carcinoid Foundation
Case Comprehensive Cancer Center, Case Western Reserve University, Seidman Cancer Center, University Hospitals Case Medical Center
Celiac Disease Foundation
Center for BrainHealth at The University of Texas at Dallas
Central Florida Behavioral Health Network
Charcot-Marie Tooth Association
Charlene Miers Foundation for Cancer Research
Childhood Brain Tumor Foundation
Children's Cardiomyopathy Foundation
Children's Craniofacial Association
Children's PKU Network
Children's Tumor Foundation
Cholangiocarcinoma Foundation
Choroideremia Research Foundation, Inc.
Chris4Life Colon Cancer Foundation
Chromosome 18 Registry & Research Society
Chromosome Disorder Outreach
Chronic Granulomatous Disease Association
Cicatricial Alopecia Research Foundation (CARF)
CLOVES Syndrome Community
Cluster Headache Support Group
Coalition for Clinical Trials Awareness
Coalition for Imaging and Bioengineering Research
Coalition for Pulmonary Fibrosis
Coalition for the Life Sciences
Colon Cancer Alliance
Columbia University
Columbia University Herbert Irving Comprehensive Cancer Center
Comprehensive Cancer Center of Wake Forest University
Comprehensive Cancer Center St. Jude Children’s Research Hospital
Congenital Adrenal Hyperplasia Research, Education & Support Foundation (CARES Foundation, Inc.)
Congenital Hyperinsulinism International
Congress of Neurological Surgeons
Consortium of Multiple Sclerosis Centers
Continuing Medical Education Coalition
COPD Foundation
Cornelia de Lange Syndrome Foundation
Cornell University
Corning Incorporated
Council for Bile Acid Deficiency Diseases
CreakyJoints
Cure Alzheimer's Fund
Cure CADASIL/CADASIL Association
Cure Cancer, P.C.
Cure HHT
Cure SMA
CureDuchenne
CurePSP Foundation for PSP/CBD & Related Brain Diseases
Cures Alliance
Cushing Support & Research Foundation
Cutaneous Lymphoma Foundation
Cystinosis Foundation
Cystinosis Research Network
Dana-Farber Cancer Institute
Dartmouth-Hitchcock Norris Cotton Cancer Center
Daybreak Children's Rare Disease Fund
Deadliest Cancers Coalition
Debbie's Dream Foundation: Curing Stomach Cancer
Debbie's Dream Foundation: Curing Stomach Cancer
Debra of America - Dystrophic Epidermolysis Bullosa Research Association
Dementia Alliance International
Depression and Bipolar Support Alliance
Desmoid Tumor Research Foundation
Dravet Syndrome Foundation
Duke Cancer Institute
Duke University School of Medicine
Dup15q Alliance
Dysautonomia Foundation
Dysautonomia International
Dystonia Medical Research Foundation
Easter Seals
Ehlers Danlos National Foundation
Elder Care Advocacy of Florida
Emory University
Emphysema Foundation for Our Right To Survive
Epilepsy Foundation
Erdheim-Chester Disease Global Alliance
Esophageal Cancer Action Network
EveryLife Foundation for Rare Diseases
Family Caregiver Alliance
Family Support Network of North Carolina
FasterCures – A Center of the Milken Institute
Fat Disorders Research Society
Federation of American Societies for Experimental Biology
Fibro Gal Agency LLC
Fibromuscular Dysplasia Society of America
Fibrous Dysplasia Foundation
Fight Colorectal Cancer
Florida International University
Florida Society of Clinical Oncology
Florida State University
Foundation Fighting Blindness
Foundation for Ichthyosis & Related Skin Types
Foundation for Prader-Willi Research
Foundation for Sarcoidosis Research
Fox Chase Cancer Center
Fred & Pamela Buffett Cancer Center
Fred Hutchinson Cancer Research Center
Friedreich's Ataxia Research Alliance (FARA)
Friends of Cancer Research
Friends of Patients at the NIH
Frontiers of Freedom
Garrett the Grand – Batten Fighter
GBS/CIDP Foundation International
Gene Giraffe Project
Genetic Alliance
Georgetown Lombardi Comprehensive Cancer Center
Gerontological Advanced Practice Nurses Association, GAPNA
GIQUIC/American College of Gastroenterology
GIST Cancer Awareness Foundation
Global Colon Cancer Association
Global Foundation for Peroxisomal Disorders
Global Genes
Global Healthy Living Foundation
Global Liver Institute
GNE Myopathy International
GRU Cancer Center
Guardian Hands Foundation
Gut Check Clostridium Septicum Foundation
H.E.A.L.S of the South
Hannah's Hope Fund
Harvard University
Health IT Now
HealthHIV
Heart Failure Society
Hemophilia Federation of America
Hepatitis B Foundation
Hepatitis Foundation International
Hereditary Disease Foundation
Hereditary Leiomyomatosis & Renal Cell Cancer Family Alliance
Hereditary Neuropathy Foundation
Hermansky-Pudlak Syndrome Network
Hispanic CREO
Histiocytosis Association
Holden Comprehensive Cancer Center at the University of Iowa
Hollings Cancer Center at the Medical University of South Carolina
Hope for Hypothalamic Hamartomas
Houston Methodist
Houston Methodist Research Institute
Huntington's Disease Society of America
Huntsman Cancer Institute
Hydrocephalus Association
HypoPARAthyroidism Association
ICE Epilepsy Alliance (Intractable Childhood Epilepsy Alliance)
Immune Deficiency Foundation
In Need of Diagnosis
Incontinentia Pigmenti International Foundation
Indian Organization for Rare Diseases
Indiana University
Infectious Diseases Society of America
Institute of Human Virology at the University of Maryland School of Medicine
Intacranial Hypertension Research Foundation
Intel
Intercultural Cultural Cancer Council Caucus
International Cancer Advocacy Network
International Essential Tremor Foundation
International FOP Association
International Foundation for Autoimmune Arthritis
International Foundation for CDKL5 Research
International FPIES Association
International Myeloma Foundation
International Pemphigus & Pemphigoid Foundation (IPPF)
International Rett Syndrome Foundation
International WAGR Syndrome Association
International Waldenstrom's Macroglobulinemia Foundation
Iron Disorders Institute
Jack McGovern Coats' Disease Foundation
Jareds Juggernaut To Cure Sarcomas
JDRF
Johns Hopkins University
Jonah's Just Begun – Foundation to Cure Sanfilippo
Joshua Frase Foundation
Judson's Legacy
Julia's Wings Foundation
Kennedy's Disease Association
Klippel Trenaunay (KT) Support Group
Klippel-Feil Syndrome Freedom
LAL Solace
LatinosAgainstAlzheimer's
Laura and Isaac Perlmutter Cancer Center at NYU Langone
Les Turner ALS Foundation
Leukemia & Lymphoma Society
LGBT Technology Partnership & Institute McKesson
Liam’s Land Organization
Life Raft Group
Little Miss Hannah Foundation
Locks of Love
Louisiana Women's Network
Lowe Syndrome Association, Inc.
LuMind Research Down Syndrome Foundation
Lung Cancer Alliance
Lung Cancer Alliance
Lung Transplant Foundation
LUNGevity Foundation
Lupus Alliance of Long Island/Queens
Lupus and Allied Diseases Association, Inc.
Lupus Foundation of America
Lupus Foundation of Florida, Inc.
Lupus Foundation of Northern California
Lupus Foundation of Pennsylvania
Lupus Foundation of Southern California
Lupus LA
Lupus Research Institute
Lupus Society of Illinois
LymeDisease.org
Lymphangiomatosis & Gorham's Disease Alliance
M-CM Network
Martin Mueller IV Achalasia Awareness Foundation, Inc.
Massachusetts Institute of Technology
Massey Cancer Center
Mayo Clinic Cancer Center
MdDS Balance Disorder Foundation
MEBO Research
Medical College of Wisconsin Cancer Center
Medical Library Association
Melorheostosis Association
Melvin and Bren Simon Cancer Center, Indiana University
Memorial Sloan Kettering Cancer Center
Men Against Breast Cancer
Men's Health Network
Mended Hearts
Mental Health America
Mesothelioma Applied Research Foundation
Miami University (Oxford, Ohio)
Michigan State University
Miracle for Madison & Friends
MitoAction
MLD Foundation
Moebius Syndrome Foundation
Moffitt Cancer Center
Mortara Instruments
MPN Research Foundation
MSUD Family Support
Mucolipidosis Type IV Foundation
Muscular Dystrophy Association
Myasthenia Gravis Foundation of America
Myasthenia Gravis Foundation of Illinois
Myocarditis Foundation
Myositis Association
Myotonic Dystrophy Foundation
Narcolepsy Network
National Adrenal Diseases Foundation
National Alliance for Caregiving
National Alliance for Eye and Vision Research
National Alliance on Mental Illness
National Alopecia Areata Foundation
National Association for Nurse Practitioners in Women's Health, NPWH
National Association for Uniformed Services
National Association of Clinical Nurse Specialists, NACNS
National Association of Health Underwriters
National Association of Hispanic Nurses
National Association of Manufacturers
National Association of Pediatric Nurse Practitioners, NAPNAP
National Association of Spine Specialists
National Ataxia Foundation
National Brain Tumor Society
National Coalition for Cancer Research (NCCR)
National Coalition for LGBT Health
National Council for Behavioral Health
National Down Syndrome Society
National Eczema Association
National Eosinophilia Myalgia Syndrome Network
National Foundation for Celiac Awareness
National Foundation for Ectodermal Dysplasias
National Fragile X Foundation
National Health Council
National Hemophilia Foundation
National Hispanic Medical Association
National Kidney Foundation
National League for Nursing, NLN
National Lymphedema Network
National MPS Society
National Multiple Sclerosis Society
National Niemann-Pick Disease Foundation
National Organization for Albinism & Hypopigmentation (NOAH)
National Organization for Rare Disorders
National Organization of Nurse Practitioner Faculties, NONPF
National Organization of Vascular Anomalies
National Osteoporosis Foundation
National Ovarian Cancer Coalition
National Pancreas Foundation
National Pancreas Foundation
National Patient Advocate Foundation
National PKU Alliance
National PKU News
National Prostate Cancer Awareness Foundation
National Psoriasis Foundation
National Retail Federation
National Spasmodic Dysphonia Association
National Spasmodic Torticollis Association
National Task Group on Intellectual Disabilities and Dementia Practices
National Tay-Sachs & Allied Diseases Association
National Urea Cycle Disorders Foundation
NBIA Disorders Association
Neurofibromatosis Network
New England Regional Genetics Group
New Orleans Council on Aging
Newborn Coalition
Newborn Foundation
Noah's Hope
North American Society of Pediatric Gastroenterology, Hepatology and Nutrition
Northern Illinois University
Northwestern University
NTM Info & Research
NYU Langone Medical Center
Ocular Melanoma Foundation
Oncology Nursing Society
Oncology Resource Networks, LLC
One Voice Against Cancer
Open Minds
Oracle
Oregon Health & Science University
Oregon Health & Science University Knight Cancer Institute
Organic Acidemia Association
Osteogenesis Imperfecta Foundation
Ovarian Cancer National Alliance
OWL – The Voice of Women 40+
Oxalosis & Hyperoxaluria Foundation (OHF)
Pancreatic Cancer Action Network
Pancreatic Cancer Action Network
Parent Project Muscular Dystrophy
Parkinson's Action Network
Parkinson's Disease Foundation
Patient Safety Movement Foundation
Patient Services, Inc.
PCD Foundation
PCD/KS Foundation
Pediatric Congenital Heart Association
Pediatric Hydrocephalus Foundation
Pediatric Stroke Network
Penn Medicine
Penn State College of Medicine
Penn State Hershey Cancer Institute
Pennsylvania Bio
Pennsylvania Prostate Cancer Coalition
Physician Clinical Registry Coalition
PKD Foundation
Platelet Disorder Support Association
PMP Research Foundation
Portland State University
Powerful Patient Inc.
Prader-Willi Syndrome Association, USA
Preeclampsia Foundation
Prevent Cancer Foundation
PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome)
Prostate Cancer Foundation
PSC Partners Seeking A Cure
Pulmonary Fibrosis Advocates
Pulmonary Fibrosis Foundation
Purdue University Center for Cancer Research
PXE International
Rally Foundation for Childhood Cancer Research
Rare and Undiagnosed Network
Rare Cancer Research Foundation
Rare Disease United Foundation
RARE Science, Inc.
RASopathies Network USA
Recurrent Respiratory Papillomatosis Foundation
Reflex Sympathetic Dystrophy Syndrome Association
Relapsing Polychondritis Awareness and Support Foundation, Inc.
Research!America
ResearchersAgainstAlzheimers
RetireSafe
Robert H. Lurie Comprehensive Cancer Center of Northwestern University
Roswell Park Cancer Institute
Rothmund-Thomson Syndrome Foundation
Rush To Live
Rutgers Cancer Institute of New Jersey
Rutgers, the State University of New Jersey SADS Foundation
S.L.E. Lupus Foundation
SADS Foundation
Saint Francis Care in Hartford Connecticut
SaludUSA
Samsung Electronics America
Samuel Oschin Cancer Institute, Cedars-Sinai Medical Center
Sanfilippo Foundation for Children
Sarcoid Networking Association
Sarcoma Foundation of America
Save Your Liver Foundation
Scleroderma Research Foundation
Self-Management Alliance
Shire
Short Bowel Syndrome Foundation
Shwachman-Diamond Syndrome Foundation
Sidney Kimmel Cancer Center at Thomas Jefferson University
Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
Sjögren's Syndrome Foundation
Society for Neuroscience
Society for Vascular Surgery
Society of Gynecologic Oncologists
Society of Interventional Radiology
Society of Neurointerventional Surgery
Soft Bones: The US Hypophosphatasia Foundation
Solidarity Project Advocacy Network
Sophia's Fund
Sotos Syndrome Support Association
Southern Illinois University School of Medicine
Spastic Paraplegia Foundation
Spina Bifida Association
SSADH Association
St. Baldrick’s Foundation
Stanford Cancer Institute
Stanford University
Stanford University School of Medicine
Stevens - Johnson Syndrome Foundation Sturge-Weber Foundation
Stony Brook Cancer Center
SUNY Upstate Medical University at Syracuse
Susan G. Komen
Syracuse University
TargetCancer Foundation
Tarlov Cyst Disease Foundation
Taussig Cancer Institute, Cleveland Clinic
Taylor's Tale
Texas Society for Biomedical Research
The AIDS Institute
The ALS Association
The Association for Frontotemporal Degeneration
The Children's Hospital of Philadelphia
The Children's Medical Research Foundation, Inc.
The Dan L. Duncan Cancer Center at Baylor College of Medicine
The Dow Chemical Company
The Eden Alternative
The Erythromelalgia Association
The Foundation for Ichthyosis & Related Skin Types, Inc.
The George Washington University Cancer Center
The Gerontological Society of America
The Guthy - Jackson Charitable Foundation
The Jackson Laboratory Cancer Center
The JMML Foundation
The Kortney Rose Foundation
The LAM Foundation
The Leukemia & Lymphoma Society
The LIVESTRONG Foundation
The Mary Babb Randolph Cancer Center at West Virginia University
The Masonic Cancer Center, University of Minnesota
The Mastocytosis Society
The Michael J. Fox Foundation for Parkinson's Research
The Morgan Leary Vaughan Fund
The Mucolipidosis Type IV (ML4) Foundation
The Myositis Association
The National Organisation for People Living with Hepatitis B
The New England Council
The Ohio State University Comprehensive Cancer Center - James Cancer Hospital and Solove Research Institute
The Simon Foundation for Continence
The Snyder-Robinson Foundation
The State University of New York
The Sylvester Comprehensive Cancer Center of the University of Miami
The United Leukodystrophy Foundation
The University of Kansas Cancer Center
The University of Kentucky Markey Cancer Center
The University of Vermont Cancer Center
The Wistar Institute
The XLH Network
Thermo Fisher Scientific Inc.
Tisch Cancer Institute of Mount Sinai
TNA - The Facial Pain Association
Tourette Association of America
Tourette Syndrome Association
Transplant Buddies
Tremor Action Network
Tuberous Sclerosis Alliance
Tufts Medical Center Cancer Center
Tulane Cancer Center
Tulane University
Turner Syndrome Society of the United States
UAMS Winthrop P. Rockefeller Cancer Institute
UC Davis Comprehensive Cancer Center
UC Irvine Health Chao Family Comprehensive Cancer Center
UC San Diego Moores Cancer Center
UConn Health Carole and Ray Neag Comprehensive Cancer Center
UCSF Helen Diller Family Comprehensive Cancer Center
UNC Lineberger Comprehensive Cancer Center
United for Medical Research
United Leukodystrophy Foundation
United Mitochondrial Disease Foundation
United Spinal Association
University of Alabama at Birmingham Comprehensive Cancer Center
University of California
University of California, Berkeley
University of California, Davis
University of California, Irvine
University of California, Irvine Health
University of California, San Francisco (UCSF)
University of California, Santa Barbara
University of Chicago Medical Center
University of Chicago Medicine Comprehensive Cancer Center
University of Cincinnati
University of Cincinnati Cancer Institute
University of Colorado Boulder
University of Colorado Cancer Center
University of Colorado, Anschutz Medical Campus
University of Delaware
University of Florida Health Cancer Center
University of Hawai'i
University of Hawai‘i Cancer Center
University of Illinois
University of Illinois Cancer Center
University of Iowa
University of Kansas
University of Kentucky
University of Maine
University of Maryland Marlene and Stewart Greenebaum Cancer Center
University of Maryland, Baltimore
University of Massachusetts Medical School
University of Miami Miller School of Medicine
University of Michigan
University of Michigan Comprehensive Cancer Center
University of Missouri System
University of New Mexico
University of New Mexico Cancer Center
University of New Mexico Health Sciences Center
University of North Carolina – Chapel Hill
University of North Carolina School of Medicine
University of Pennsylvania
University of Pittsburgh
University of Pittsburgh Cancer Institute
University of South Florida
University of Texas
University of Texas M.D. Anderson Cancer Center
University of Texas Medical Branch in Galveston (utmbHealth)
University of Texas Southwestern Medical Center
University of Toledo
University of Virginia Cancer Center
University of Washington
University of Wisconsin-Madison
US Hereditary Angioedema Association
US Pain Foundation
Us TOO International Prostate Cancer Education and Support Network
USAgainstAlzheimer's
USAgainstAlzheimer's Activists Network
USAgainstAlzheimer's Clergy Network
USF Health Byrd Alzheimer's Institute
Vanderbilt University
Vanderbilt-Ingram Cancer Center
Vasculitis Foundation
Verizon
Vestibular Disorders Association
Veterans Health Council
VHL Alliance
Vietnam Veterans of America
Vitiligo Support International
Volunteers of America
Washington State University
Washington University in St. Louis
Wayne State University
Western Michigan University
Williams Syndrome Association
Wilmot Cancer Institute
Wilson Disease Association
Winship Cancer Institute of Emory University
WomenAgainstAlzheimer's
WomenHeart: The National Coalition for Women with Heart Disease
Worldwide Syringomyelia & Chiari Task Force
Yerkes National Primate Research Center, Emory University
Read the support letters for 21st Century Cures online HERE.
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