This is a guest post.
My Journey to complete remission
Updated June 2023
#TheNicotineTest
Twitter: NickChambers2
ME/CFS
Diagnosed in 2015 – 8 years ago – Possible Glandular Fever.
Vax injury (AZ)
2021 – 2 years ago – Moved from mild to moderate. Increase in symptoms and severity. Mostly housebound.
Long Covid??
Caught Covid twice, but no long Covid diagnosis.
Symptoms:
PEM, Brain Fog, Light, noise, heat, cold sensitivity, Anger, muscle tightness & soreness, air hunger, body jerks, anxiety, depression, joint soreness, IBS.
Condition:
Mild & Moderate. I need to use the bannister to climb the stairs. I’ve been generally housebound since my Covid vaccine.
I’ve included some links in this document as some people have asked for them. Various alternatives are usually available and often at a lower cost. I’m not endorsing or recommending anything.
My Health Routine:
Most of these are daily and I’ve been doing most of them for 12 months or more.
At one stage I was taking 96 tablets a day. I’m now taking 35 tablets a day.
Pemf Mat – Curatron XPSE
Twice a week HBOT – At local MS centre
Red light panel – Biomax 900 https://platinumtherapylights.com
16:8 intermittent fasting
Two minutes on a rebounder / lymphatic drainage
Nebulising 0.5% hydrogen peroxide
Low dose naltrexone – 1ml
Grounding sheet on bed
Grounding in garden
100 billion oral probiotics (Symprove & Capsules)
Additional prebiotic powders (6 types)
Skin brushing
Only drinking distilled water
Cold showers
Coffee Enemas – Join this group for info https://m.facebook.com/groups/coffeebreaksupport/?ref=share
Pre & pro-biotic enemas
Juicing
Sunlight exposure
Epsom baths
Vagus nerve stimulation (Concha Cymba/tens machine, Neck/Pulsetto, Chest/Amofit S)
Infrared sauna blanket – https://www.mihigh.com/products/infrared-sauna-blanket
Very little Alcohol, Red meat, Gluten, Wheat, Dairy.
At home oxygen concentrator – DEDAKJ 2L – 9L (3 lpm at 75% oxygen) https://amzn.eu/d/hRjAnZ0
EMF’s – I’ve moved our bed and my child’s bed a foot from the wall due to increased EMF’s from the electric wiring. I no longer charge anything in my room. This is the EMF reader I own: https://amzn.eu/d/7yb66g0
Mobile Phone: I try to not have my mobile in my pocket, to reduce any potential radiation exposure.
Also experimented with:
Methylene Blue
DMSO
Diamateous Earth
High dose B12
Methyl B Vitamins
Nebulising glutathione
Lymphatic drainage massage
Cryotherapy
Nattokinase
Rectal Ozone Treatment
Energy Therapy
Iodine (Lugols)
Colonics
Binaural Beats – Theta Waves
Acupuncture
Creatine Monohydrate
Meditation
Activated charcoal
Juicing 10cm ginger root a day
Anti Depressants
Armpit detox (as aluminium levels were high)
Mushrooms (Chaga, lions mane etc)
CBD oil (no THC)
Melatonin 5mg before bed
Herbal remedies
Homeopathic remedies
Not working 9-5 to reduce stress
Yoga, Pilates & Stretching
Mindfulness
The Lightning Process (brain retraining)
Talking therapy
Keto diet
Goat Kefir
Irlen lenses to reduce light sensitivity
Ear plugs/Air pods to reduce noise sensitivity
Nutritionist for 12 months to assist with the mine field of supplements
My favourite Tests & Key findings/results:
Www.biomesight.com – Helped to create an improved gut microbiome
Oat Test – told me I had high level of aluminium and an e-coli infection – who knew!!
DNA Test (www.mydnahealth.co.uk – pro version) I don’t absorb vitamin D from the sun very easily (that explains the SAD Syndrome!) increased my vit D to 10,000 IU a day
York Test – Told me I have various food intolerances. Amended accordingly.
My Favourites :
Nicotine Patches (Game changer)
Coffee enemas
Vagus Nerve stimulation
Juicing (lower energy required for digestion)
Low dose naltrexone – definitely helped, but struggled to find ideal dose. Currently back down to 1ml a day.
Did a www.biomesight.com test and followed recommendations for improved gut health
Sauna blanket – Helped to detox and sweat – we don’t sweat when we have fatigue!
Red light – no change to pem or brain fog, but it made my hair grow back and fixed my bletheritis!
1g Cinnamon capsules a day for tight hamstrings
Cordless tens machine for muscular aches and pains
Intermittent Fasting – 16:8 for 6 days a week for probably the last 9 months
My Nicotine Patch Journey
Position: Left shoulder (upper body is best, but not neck or head). Put new patches in different areas of left shoulder to avoid irritation from patches. Reduced effectiveness if placed on fatty areas apparently. May come off in Bath. Use additional tape to hold in place if you need to.
Nicotine Patches I used: https://www.amazon.co.uk/dp/B001E5CDTG?ref=ppx_pop_mob_ap_share
These patches can’t be cut, but if you want to start on a lower dose (3.5mg), place some tape underneath the patch, covering half.
Started Patches: 15th April 2023
Days 1-7 : 7mg Nicotinell patches, worn 247
Side Effects: Nausea, headaches, herxing, flu like symptoms, increased depression and anxiety. Sleep affected. Crazy angry dreams.
Days 8-20: no patches. Feeling better each day, but only 90% recovered.
Days 21&22: 7mg patches. 247. Thought process is that I might need to mop up the last bit of spike protein. Same side effects as before.
Days 23-34: No patches. Feeling 95% better – all symptoms.
Days 35&36: 7mg patches. Just in case right? Hardly any side effects this time. I think it might be out of my system.
Days 36 onwards: I’ve got drunk, I’ve had a cold and cough, I’ve been kayaking, I’ve been on holiday and had to run to the gate as nearly missed the flight, I’ve dug holes and mixed cement. Only lingering symptoms are minor body jerks and air hunger. Still no PEM or brain fog.
Day 56: Happy, Happy, Happy.
Future: I will try the patches again for two days in a months time. Just to see if I herx etc.
Helpful Links:
#TheNicotineTest Links!
Survey!
bit.ly/3WHY94U
Protocol 2.0
bit.ly/3WJHUnN
Step by Step Dose
bit.ly/42oQRV6
Objectives & Doubts
bit.ly/43hGxzc
Hypothesis 1.0
bit.ly/3WFnsod
https://twitter.com/hashtag/TheNicotineTest?src=hashtag_click
External websites:
Nicotine Patch Study:
https://bioelecmed.biomedcentral.com/articles/10.1186/s42234-023-00104-7
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9845100/
Make sure you translate to English in your browser:
Part of @RenzPolster’s comment on a recent Health Rising article:
“in healthy people after exercise: the DMN [default mode network] is being switched off and the central threat response networks are being activated. In ME/CFS, however, parts of the DMN are NOT being turned off after stress exposure but are activated instead.”
https://pubmed.ncbi.nlm.nih.gov/33216167/
Detox:
To help remove the spike protein, I detoxed before, during and after the patches.
Daily supplements:
Activated Charcoal 500mg,
Vitamin C 5g,
Ashwaghanda 500mg,
Licorice Root 500mg,
Psyllium Husk Powder 3g,
NAC 1.5g.
I would also take my usual probiotics, prebiotics and vitamins and mineral supplements.
Note: I took the patches off on two nights, as I was struggling to sleep. I just put it back on when I woke up in the morning.
Summary:
I’m now in complete remission. I mean COMPLETE REMISSION (well… I have very mild air hunger and body jolts once a day). I feel the same as I was prior to my CFS diagnosis 8 years ago.
The NICOTINE PATCHES were like a light switch moment. The only thing that physically worked and continued to work for more than a week.
QUESTION: Am I in remission because of all the other things I’ve done/doing, which made it easier for my body to recover once the Nicotine Patches did their thing? Time will tell.
Interesting fact: My son would always want to feel my bicep like 8 year olds do. It has always hurt my bicep to tense it (since CFS) and it was sore when my son would squeeze it – but I manned up and let him do it anyway .
But since the nicotine patches, the soreness has gone and my muscles feel fuller again!
UPDATE: 55 days in, i was on holiday and I caught a cold. A few days later I felt the fatigue, brain fog, anxiety return . I’d also developed constipation. Putting 2 and 2 together, I realised I wasn’t taking all my pre & probiotics and I wasn’t doing my usual Pemf, oxygen or coffee enemas etc.
I bought some psyllium husk and other prebiotic fibres and within 12 hours, my fatigue, brain fog and anxiety had completely gone! Therefore, this reaffirms to me, that our gut health is so important in our recovery.
My supplement list
(Taken in the last two years – for different symptoms – Bold are my existing supplements)
K2-7+Menaquingold +K1
Ubiquinol
Curcumin
Omega 3 (DHA/EPA)
Multivitamin
Acetyl L Carnitine
Creatine
PQQ
NAC
L Carnitine
Alpha Lipoic Acid
Glucosamine, Chrondroitin, MSM
Vitamin D3 – 5000 IU
NADH Sublingual
Liposomal Glutathione
Resveratrol
Silymarin Complex
Echinacea
Black Seed Oil
Chitosan & Chromium
Choline & Inositol
Olive Leaf Extract
Calcium Hydroxyapatite
Trans-Resveratrol
Antarctic Krill
Trans-Resveratrol
Vitamin B12 (Sublingual)
Magnesium – Various types
Vitamin C Sustained release 3g a day
Vitamin B3 (Niacinamide) prolonged release
Aloe Vera Juice
Organic Ashwaghanda KSM-66
Selenium – 200mg a day
Potassium
Chelated Manganese
Flushing Niacin
Starflower Oil (omega 6)
Quercetin – 500mg
L-Theanine
Nattokinase
K-2 – 100mg
Zinc – 50mg
Green Tea / EGCG
ADRENergize (Adrenal support)
Berberine
Astralagas
Monolaurin
Lions Mane
Chlorella
Spirulina
Lecithin
Cinnamon – 500mg (affects good e-coli?)
Garlic Oil
Melatonin – 5mg
Panseng Ginseng
L-Lysine
Rhodiola
Ginkgo Biloba
BCAA
L-Arginine & L-Citrulline
Iron
Activated Charcoal
OPC – Grape Seed Extract
PROBIOTICS
Sporebiotics
Symprove
Bio cultures complex
Iherb – California Nutrition 30 billion
Probiotic complex
Acidophilus
MicroMax – The Healthy Company
Optibac – Immune Support
Chuckling Goat Kefir
POWDERS
Turmeric
Ginger
Ashwaghanda
Pine Pollen
Rice Bran
Wheatgrass
Hemp Protein
D-Ribose
Lucuma Powder
Moringa Oleifera
Baobab Powder
Vitamin C Powder
Chlorella
L- Glutamine
Collagen Protein
PREBIOTICS
Inulin (chickory root)
Bimuno (GOS)
PHGG (Partially Hydrolised Guar Gum)
Guar Gum Powder
Gum Arabic
Psyllium Husk Powder
Acacia Powder
Pure HMO (Human Milk Oligosaccharides)
Organic Potato Starch
Bifido Boost (XOS)
Lactulose solution
Note: Many prebiotic and dietary adjustments were made after my www.biomesight.co.uk test. I’ve done three altogether over the last 12 months. Results also uploaded to www.microbiomeprescription.com for further insight, analysis and recommendations.
30 grams of ground nuts and seeds a day.
Chia, linseed, pecan, almond, hemp, pumpkin, sunflower & Brazil.
CBD Oil (20%)
Dr Myhills Sunshine Salt
BOOKS
I will continue to update and share this document with new revelations and thought processes.