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Pediatric Patient Resources

2013-06-30

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= Resources for Physiotherapists and the Families of
their
Pediatric
Clients
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= Resources for Physiotherapists and the Families of
the
Pediatric
Population
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This section is dedicated to the rare conditions diagnosed in the pediatric population.

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'''Kosair Childrens Hospital'''      • Look into conditions and services      • Find a doctor      • See current news      • Visit their health library      • [http://www.kosairchildrens.com/ http://www.kosairchildrens.com/]

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 '''Pediatric Leukemias'''      • The Children’s Hospital of Philadelphia      • In depth resource of pediatric leukemias      • [http://www.chop.edu/service/oncology/cancers-explained/leukemia-diagnosis-and-treatment.html http://www.chop.edu/service/oncology/cancers-explained/leukemia-diagnosis-and-treatment.html]

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 '''Pediatric Rheumatology'''      • Review of childhood sarcoidosis      • [http://www.ped-rheum.com/content/6/1/16 http://www.ped-rheum.com/content/6/1/16]

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 '''Multiple Sclerosis Foundation'''      • Insight on pediatric MS      • Coping with MS      • [http://www.msfocus.org/article-details.aspx?articleID=374 http://www.msfocus.org/article-details.aspx?articleID=374]

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 '''Failure to Thrive'''      • Clinical key by Elsevier      • In depth overview of diagnosis      • [https://www.clinicalkey.com/topics/pediatrics/failure-to-thrive.html https://www.clinicalkey.com/topics/pediatrics/failure-to-thrive.html]

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'''National Organization for Rare Diseases'''      • Search the rare disease database and download the free report      • [http://www.rarediseases.org/rare-disease-information/rare-diseases http://www.rarediseases.org/rare-disease-information/rare-diseases]

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 '''The Global Genes Project'''      • Learn what they are about      • Get involved      • Resources available           o Search their RARE list at [http://globalgenes.org/rarelist/ http://globalgenes.org/rarelist/]           o Search their RARE facts at [http://globalgenes.org/rarefacts/ http://globalgenes.org/rarefacts/ ]      • [http://globalgenes.org/ http://globalgenes.org/ ] 

== Autism Spectrum Disorder and Autism<ref name="Autism Speaks">Autism Speaks. It's Time to Listen. Autism Speaks. http://www.autismspeaks.org/. Accessed June 27, 2013.</ref> [[Image:Autism ribbon.png|120x132px]] ==

== Autism Spectrum Disorder and Autism<ref name="Autism Speaks">Autism Speaks. It's Time to Listen. Autism Speaks. http://www.autismspeaks.org/. Accessed June 27, 2013.</ref> [[Image:Autism ribbon.png|120x132px]] ==

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'''How is ASD/Autism diagnosed?'''      • No specific medical test      • Administer autism-specific behavioral evaluations      • Parents usually notice:           o Failure to make eye contact           o Not responding to their name           o Playing with toys in unusual or repetitive ways           o Other signs visit [http://www.autismspeaks.org/what-autism/learn-signs http://www.autismspeaks.org/what-autism/learn-signs]      • The Modified Checklist of Autism in Toddlers           o List of informative questions about child           o Answers can indicate whether further evaluation by a specialist is needed

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'''How is ASD/Autism diagnosed?'''      • No specific medical test      • Administer autism-specific behavioral evaluations      • Parents usually notice:           o Failure to make eye contact           o Not responding to their name           o Playing with toys in unusual or repetitive ways           o Other signs visit [http://www.autismspeaks.org/what-autism/learn-signs http://www.autismspeaks.org/what-autism/learn-signs]      • The Modified Checklist of Autism in Toddlers           o List of informative questions about child           o Answers can indicate whether further evaluation by a specialist is needed

            [[Image:Eac-block.jpg]]           o Utilize this screening tool at [http://www.autismspeaks.org/what-autism/diagnosis/screen-your-child www.autismspeaks.org/what-autism/diagnosis/screen-your-child]      • Typical diagnosis involves a multidisciplinary team      • Genetic testing may be recommended 

            [[Image:Eac-block.jpg]]           o Utilize this screening tool at [http://www.autismspeaks.org/what-autism/diagnosis/screen-your-child www.autismspeaks.org/what-autism/diagnosis/screen-your-child]      • Typical diagnosis involves a multidisciplinary team      • Genetic testing may be recommended 

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== Cerebral Palsy (CP) [[Image:Cerebral-palsy-awareness-ribbon.jpg.png|120x132px]] ==

== Cerebral Palsy (CP) [[Image:Cerebral-palsy-awareness-ribbon.jpg.png|120x132px]] ==

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== Down Syndrome <ref name="NDSS">National Down Syndrome Society. Down Syndrome. National Down Syndrome Society. http://www.ndss.org/Down-Syndrome/What-Is-Down-Syndrome/. Published 2012. Accessed June 24, 2013.</ref>  [[Image:Down.syndrome.ribbon.magnet.jpg|120x132px]] ==

== Down Syndrome <ref name="NDSS">National Down Syndrome Society. Down Syndrome. National Down Syndrome Society. http://www.ndss.org/Down-Syndrome/What-Is-Down-Syndrome/. Published 2012. Accessed June 24, 2013.</ref>  [[Image:Down.syndrome.ribbon.magnet.jpg|120x132px]] ==

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           o Usually identified by certain physical traits                 Low muscle tone                 Single deep crease across the palm of the hand                 Slightly flattened facial profile                 Upward slant to the eyes

           o Usually identified by certain physical traits                 Low muscle tone                 Single deep crease across the palm of the hand                 Slightly flattened facial profile                 Upward slant to the eyes

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           o Chromosomal analysis may also need to be done to confirm the diagnosis                 This is done by drawing a sample of the baby’s blood 

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           o Chromosomal analysis may also need to be done to confirm the diagnosis                 This is done by drawing a sample of the baby’s blood 

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'''Resources'''  

'''Resources'''  

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     • '''Down Syndrome of Louisville'''           o Lifelong learning center for individuals with DS           o [http://www.downsyndromeoflouisville.org/ http://www.downsyndromeoflouisville.org/]     

     • '''Down Syndrome of Louisville'''           o Lifelong learning center for individuals with DS           o [http://www.downsyndromeoflouisville.org/ http://www.downsyndromeoflouisville.org/]     

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     • '''National Down Syndrome Society'''           o Information about Down Syndrome           o Lists resources including:                  Publications                 Managing behavior                 Research                 And more!           o [http://www.ndss.org/Resources/ http://www.ndss.org/Resources/] 

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     • '''National Down Syndrome Society'''           o Information about Down Syndrome           o Lists resources including:                  Publications                 Managing behavior                 Research                 And more!           o [http://www.ndss.org/Resources/ http://www.ndss.org/Resources/] 

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     • '''National Association for Down Syndrome'''           o Programs           o Resources and information           o [http://www.nads.org/pages_new/resources.html http://www.nads.org/pages_new/resources.html] 

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     • '''National Association for Down Syndrome'''           o Programs           o Resources and information           o [http://www.nads.org/pages_new/resources.html http://www.nads.org/pages_new/resources.html] 

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     • '''Real Life Down Syndrome'''           o Blog spot           o Gives insight on how to raise a child with DS           o Search resources by state           o [http://reallifedownsyndrome-resources.blogspot.com/ http://reallifedownsyndrome-resources.blogspot.com/] 

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     • '''Real Life Down Syndrome'''           o Blog spot           o Gives insight on how to raise a child with DS           o Search resources by state           o [http://reallifedownsyndrome-resources.blogspot.com/ http://reallifedownsyndrome-resources.blogspot.com/] 

     • '''Kentucky Parent Support Groups'''           o Lists support groups by county           o [http://dbhdid.ky.gov/dbh/files/oflsecb.pdf http://dbhdid.ky.gov/dbh/files/oflsecb.pdf] 

     • '''Kentucky Parent Support Groups'''           o Lists support groups by county           o [http://dbhdid.ky.gov/dbh/files/oflsecb.pdf http://dbhdid.ky.gov/dbh/files/oflsecb.pdf] 

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== Recent Related Research (from [http://www.ncbi.nlm.nih.gov/pubmed/ Pubmed]) ==

== Recent Related Research (from [http://www.ncbi.nlm.nih.gov/pubmed/ Pubmed]) ==