2016-07-02

Bioethics Information and Resources - Fogarty International Center @ NIH



Bioethics Information and Resources

Fogarty aims to strengthen research bioethics expertise in developing countries by providing resources and information to bioethicists, research ethics committee members, researchers, students, and everyone else involved in international health research. In keeping with its wider commitment to building the capacity to conduct research in low- and middle-income countries (LMICs), Fogarty believes it is important to build in-country bioethics capacity. This enables local ethics review of research, improves research into the distinctive ethical problems in LMICs, and increases the representation of different voices in on-going global discussions of the ethics of health research.

Bioethics Resources

For Teachers and Students - teaching tools, career path advice, and online education information

For Investigators and Ethics Committees - regulations, guidelines, practical aids, committee information

For Bioethics Researchers - journals and granting agencies

Bioethics Materials in Other Languages - networks, trainings, journals, and guidelines and regulations in a variety of languages

Top Bioethics News

Single IRB policy to streamline reviews of multi-site research
NIH news, June 21, 2016

NIH Policy on the Use of a Single Institutional Review Board for Multi-Site Research [PDF], updated June 2016

E-book: Public Health Ethics: Cases Spanning the Globe
from Springer International Publishing, 2016

Research Involving Human Subjects from NIH

Human subjects information for NIH training grants and NIH foreign awards

Ethics of Research in Pregnancy from the Global Forum on Bioethics in Research (GFBR)
November 3 - 4, 2016
Buenos Aires, Argentina
By application only. Applications closed.

Global Forum for Bioethics in Research 2015 Meeting Report and Presentations

New publication: Doing Global Science: A Guide to Responsible Conduct in the Global Research Enterprise
from the InterAcademy Partnership (IAP), Princeton University Press, February 2016

International Compilation of Human Research Standards (2016 Edition)
Office for Human Research Protections (OHRP), U.S. Department of Health & Human Services (HHS)

HHS announces proposed changes to Common Rule
Sep / Oct 2015 Global Health Matters

Ethics education tools for professors, instructors, practitioners and the public
Presidential Commission for the Study of Bioethical Issues

Valuing Stillbirths, co-authored by Fogarty staff
Bioethics, July 2015, published online November 14, 2014

Funding: Ethics and Regulatory capacities
from the European and Developing Countries Clinical Trials Partnership (EDCTP)
Application deadline: September 26, 2015

Ethics and Ebola: Public Health Planning and Response
from the Presidential Commission for the Study of Bioethical Issues, released February 26, 2015

Journal article: International Research Ethics Education, co-authored by Fogarty staff
JAMA, February 3, 2015

Chinese and U.S. researchers see need for earlier training in research ethics
AAAS news, October 21, 2014

Research Ethics in Africa, by Mariana Kruger, Paul Ndebele, Lyn Horn
A free e-book for research ethics committee members, authors include Fogarty bioethics trainees

Fogarty awards four 2014 bioethics grantsFogarty news, June 4, 2014

Supporting International Research Ethics and Education – An Inter-American Bioethics Collaboration
blog.Bioethics.gov, May 2, 2014

Ethics of Clinical Research: Multinational Research and Capacity Building, a collection of papers on Fogarty bioethics grantees and trainees
Journal of Empirical Research on Human Research Ethics, December 2013 and April 2014 issues

Fogarty-supported Global Forum for Bioethics in Research: Past, present and future
South African Journal of Bioethics and Law, May 2014

Bioethics in research: strengthening the foundation
Opinion by Fogarty Director Dr Roger I Glass
Mar / Apr 2014 Global Health Matters

Anticipating and Communicating Through Education
blog.Bioethics.gov, February 25, 2014

Fogarty bioethics grantees discuss lessons learned
Fogarty news, January 22, 2014

Related Fogarty News and Information

The 50th Anniversary of the Declaration of Helsinki: Progress but Many Remaining Challenges
JAMA, November 27, 2013
co-authored by Fogarty's Dr. Joseph Millum

The ethics of placebo-controlled trials: Methodological justifications
Contemporary Clinical Trials, November 2013

Fogarty awards 2013 bioethics grants
Fogarty news, August 19, 2013

Examining ethics in study recruitment manipulation
May / Jun 2013 Global Health Matters

Focus on Bioethics
Nov / Dec 2011 Global Health Matters

Bioethics: protecting lives in service to research

Bioethics takes root in Nigeria

Trainee to teacher: Leveraging bioethics learning in India

NIH Common Fund supports bioethics study, training

NIH News and Resources

NIH on Research Involving Human Subjects from the NIH Office of Extramural Research

NIH Office of Clinical Research and Bioethics Policy from the NIH Office of Science Policy

NIH Clinical Center Department of Bioethics

NIH Clinical Center International Training Programs

National Institute of Environmental Health Sciences (NIEHS) Bioethics Resources

National Human Genome Research Institute (NHGRI) Bioethics Resources

National Library of Medicine (NLM) Bioethics Resources

Other US Government Resources

Department of Health and Human Services (HHS) resources

International resources from the HHS Office for Human Research Protections (OHRP)

Secretary's Advisory Committee on Human Research Protections (SACHRP) at HHS

Presidential Commission for the Study of Bioethical Issues

blog.Bioethics.gov - the blog of the Presidential Commission for the Study of Bioethical Issues

National Bioethics Advisory Commission

Other Online Resources

Global Forum on Bioethics in Research (GFBR)

Contact Joe Millum at Joseph.Millum@nih.gov with questions, corrections or suggestions.

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